So Tristan got Botox on Tuesday. After a follow up with his rehab specialist, we decided he needed another round. And some more physical therapy. While he seemed to be doing great for the most part (crawling, sitting, standing and eventually walking), he has started to have the tilt again. WHy is this bad? Well, because for one thing it can affect his vision. It could also affect his inner ear and balance. It's not good to go through life with your head constantly at an angle.
My dad also offered to come hang out with us because Nick was going to be in class. So he met us in the parking lot and walked with Tristan to the door. Once signed in, we let Tristan run around and play with all the toys in the lobby (It's Primary's, so there is a lot). And then once in the room, same thing. They had a childlife specialist come in to keep him entertained with bubbles and what not while we waited. But he had just as good of a time getting into all the cupboards and drawers.
When it was time to go into the OR, Tristan knew something was up. We put him on the bed and he was okay playing with the toys again, but when they brought out the mask, this time he flipped. He was not happy at all! We had to lie him down and pin him and hope he would fall asleep fast. It took him about two minutes, but eventually he went limp and stopped crying. I said "have fun guys," and we went back out to the waiting room.
It took half the time to get the procedure done this time around. Last time we had enough time to get breakfast, this time barely enough to check our email! It's probably because the minute they took off the mask he woke up and tried to crawl off the bed. The nurses said he seemed like a very independent kid. When we went back to the recovery room, he was doing his silly little head stand and trying to get away from them getting his blood pressure. He was very grumpy. Papa gave him lots of love, which he seemed to be okay with. And then I tried to give him a bottle and he freaked out. So the nurse offered him some gold fish, he ate two and the rest ended up on the floor. And the juice box all over me.
He was happy to snuggle with my dad all the way out to the car, but threw a fit when I tried to put him in his car seat. Thankfully Papa brought him a post procedure present, a portable DVD player to entertain him on the long ride home. Can I just say, best gift ever?? Tristan did not make a peep the whole way back, he just watched Rio, drank his bottle, and snuggled monkey. I have a sneaking suspicion my dad got it because of the horrible trip to and from the fair (haha), and he knows how stressed I get driving when I can't get Tristan to be quiet. So thanks dad, you're the best!
Now, two days later, I'm looking into getting a special helmet for Tristan. He has hit his head at least 10 times, and it looks like we brow beat him ( literally). He hit his head so hard on our bed frame he still has the goose egg this morning. I feel so terrible, but the botox takes away his balance completely. I try to carry him everywhere but he gets mad and frustrated, which I can understand. I decided to just baby proof his bedroom to be more like a padded room and I'm just going to let him play in there, poor kid. Hopefully though, this will help him get the strength he needs to be able to hold his head up right. If it does, the next step…..neck surgery.
Don't leave me!
Ooh, what's in here?
Can I play with it?
Look at Papa!
Just waking up, not happy
Back home and playing
Ready to fall over and hit something….
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